Michigan Assistive Technology (AT) Program Blog
A Feisty and NonCompliant View on AT!
By Jen Mullins, BS, CTRS, MATP Staff
In my last two blog posts, Access Moves Fashion Forward! and Taking Steps Towards Access in Footwear!, I wrote about how the things that we wear are being designed with access in mind for more and more people. In this post, I share about how clothing, footwear, and accessories are shown & promoted. For a long time, there hasn’t been much representation of people with disabilities and the Assistive Technology (AT) they use in fashion. Jillian Mercado, a model who has spastic muscular dystrophy and uses a powerchair, shared: “Even as a very young girl and adolescent, I always knew that there was a hole in the fashion industry and that it wasn’t fair that I did not see myself reflected. I wanted to feel like I was a part of it, but there was nothing that was helping me see that.”
In recent times, representation has been changing. In Teen Vogue’s September 2018 issue, Vogue profiled three models with disabilities: Chelsea Werner, Jillian Mercado, and Mama Cax. The piece was written by journalist Keah Brown who has Cerebral Palsy. Brown writes, “Disabled people and disabled models are still left out of most campaign ads and runway shows. This lack of representation has implications: When you go so long without seeing yourself it is easy to interpret that lack of representation to mean you’re ugly and unworthy, that you deserve to be invisible or even worse, are grotesque. The erasure can have an impact on your mental health.”
In fall 2018, The Mighty published a piece that highlighted the growing representation in models: More models with disabilities are making their way up the ranks. One new face is Aaron Philip, who’s signed with Elite Model Management. Philip is a 17-year-old person of color, trans, disabled model — and now just one of two models who use Assistive Technology (wheelchairs) to sign with a major agency. “I enter the fashion world with intentions of making the industry more diverse, inclusive, and accessible,” Philip shared. “I have never seen a physically disabled supermodel or a Black transfeminine model heralded, celebrated, or even working in the way other models are — and I hope to change that.”
In the summer of 2018, Aerie, the lingerie brand from American Eagle launched a campaign that featured models with disabilities; some who are shown using their Assistive Technology and Durable Medical Equipment (DME). One model wears an Ostomy bag (a pouch is worn over the stoma to collect stool or urine), one model is photographed using forearm crutches, a model is shown wearing her insulin pump, another model is shown using her wheelchair and posing, and a model who has Down Syndrome is photographed with a huge smile on her face. President Aerie Jennifer Foyle shared, “Now, more than ever, we want to […]
Rachel Dancy posted this lesson in frustration on The Mighty. The problem Rachel describes with stuttering also occurs with disability “accents” where a disability characteristic makes speech less clear.
I decided to take a crack at coming up with some AT that could help reduce this kind of frustration. And I found some described later in the post.
Say Your Name #frustration #Stuttering By Rachel Dancy
There are times when phone technology is a blessing because of better service and quality, cute emojis and text messaging. All of that is fabulous. But the one thing that technology hasn’t improved is making phone automated prompts accessible to everyone. To a person who stutters, the automated phone prompts can be very frustrating. It doesn’t understand stuttering, only fluent speech. It prompts one to say your name. Sounds easy…but for most stutterers, saying your name is quite the hassle. You can’t replace it with another synonym, so you try.
“Please try again.”
“Rachel”. One barrier down, few more to conquer.
“Please state the reason for your call. Would you like to schedule an appointment, cancel an appointment, speak to a representative?”
More reasons than I can possibly want and all of them more than a word. Ugh. Silence.
“Please make a selection.” All of the choices are listed again as if I did not hear the first time. Hearing is not the problem; it is saying it. After thinking for a few seconds, I need to make an appointment. ” Make an ap-appointment.”
” Please try again.” I try to really enunciate and scream into the phone. “MAKE AN APPOINTMENT!”
“You selected ‘make an appointment’. Is that correct? Say yes or no.”
“Please try again.”
“Would you like an appointment for a haircut, manicure, pedicure, mani-pedi, wax or other? Say your choice.”
It’s a good thing I just need a haircut otherwise this would be an incredibly long phone call. Not to mention an incredibly expensive appointment too.
“Please try again.”
“Manicure.” Sometimes you have to go with what works, or comes out better. I suppose my nails could use some touching up. A hair cut will have to wait.
“Please wait while we connect you.” Elevator music plays. At least I am going to be connected to a human being instead of a computer. “Hello, this is Ruth. Thank you for calling; how may I assist you today?”
“I w-would like to make an ap-ap..”
“Appointment?” she finished for me, which is another pet peeve, but no point in biting her head off.
“Morning or afternoon?”
“How about afternoon?”
Now I have to pick a day. Looking at my calendar.
Ruth asks, ” Does Thursday at 2 work out?”
Crap. No, it doesn’t. On with the conversation.
“N-No, it doesn’t. Three O’clock? ” Please, please say yes.
“3pm is available. I will mark you down. Have a good day.” Ruth politely says goodbye and I breathe a sigh of relief. Technology might not be the greatest, but stuttering won’t get in the way of communicating with other people.
By Jen Mullins, BS, CTRS, MATP Staff
While some designers are focusing on creating more accessible clothing, other companies are zeroing on footwear! For people who have limited mobility & dexterity and decreased stamina & balance, putting on traditional, lace up shoes can be difficult. Velcro laces have been popular and useful to many, but others share that they want better solutions. In July 2015, Nike release the FlyEase: “a shoe with a wrap-around zipper that opens the back of the shoe near the heel-counter, making it easier to slide the foot in and out. At the same time, the system provides sufficient lock down and eliminates the need to tie traditional laces.” Nike shared that they received a letter from Matthew Walzer, a customer of their shoes, requesting a shoe that he could put on himself. Walzer has Cerebral Pasly and told Nike that he needed daily assistance to put on his Nike shoes. Though they aren’t a perfect fit for everyone, the FlyEase is a great step in the right direction.
More recently, Nike released their shoes with E.A.R.L. (Electric Adaptable Reaction Lacing). “E.A.R.L’s technology makes self-lacing shoes possible. It electronically adjusts the lacing, pressure and fit to the contours of your foot. Once your heel hits the built-in sensor, E.A.R.L. automatically tightens until the fit is perfect.”
After a successful prototype creation, in 2015 BILLY footwear launched a fruitful crowdfunding campaign and today sell high top and low top styles of shoes for kids and a limited line for adults. “Smashing fashion with function, BILLY Footwear incorporates zippers that go along the side of the shoes and around the toe, allowing the upper of each shoe to open and fold over completely. Thus the wearer can place his or her foot onto the shoe foot bed unobstructed. Then, with a tug on the zipper-pull the shoe closes and secures over top the user’s foot.” Additional styles & options for adults are reportedly in the works, “We are actively working on adult designs for both men and women and are set to launch those designs in August 2019.”
It’s exciting that access is being built into footwear! But what do you do if you want to keep wearing your current shoes and need some help? Here are a few Assistive Technology (AT) devices that can make putting on, taking off, and wearing footwear more accessible:
- Long Shoehorn and Sock Remover with Non-Slip Handle: for people who have difficulty bending or reaching due to limitations in flexibility, mobility and dexterity in the fingers, hands and arms. Ideal for those suffering from neck and back problems.
- No Tie Elastic Shoelaces: laces are stretchy and held in place with a locking mechanism without having to tie them.
- Heavy-duty elastic shoelaces: for those who require or prefer better support.
No Bend Shoe Remover: for people […]
By Aimee Sterk, LMSW, MATP Program Staff
People with barriers to community living who use supports through the Mi Choice Waiver Program (which provides services in the community instead of nursing homes) participated in a study that showed that accessing assistive technology, instruction, and home modifications decreased falls and hospitalizations and increased their ability to complete activities of daily living.
Sandra Spoelstra, RN, PhD, of Grand Valley State University, led a research program (Spoelstra et al, 2018) to implement and study CAPABLE (Community Aging in Place, Advancing Better Living for Elders) in four regions of the state.
During the 32 weeks of the study, participants worked with social workers, nurses, occupational therapists, and a handyperson to address activities that are challenging at home like meal preparation, medication management, bathing, and dressing. The team also looked at pain, mood, fall prevention, medications/interactions/side effects, communication with the doctor, incontinence management, sexual health and smoking cessation.
The occupational therapists conducted home visits, helped people access AT, and taught techniques to accomplish activities of daily living. Social workers addressed social and emotional needs, and the nurses conducted medication reviews. The handy person did home modifications like adding grab bars or made repairs to improve the home (these were required to be medically necessary).
This demonstration program is now being rolled out at all of the Mi Choice Waiver programs in the state. Soon, everyone will have access to these interventions and can use their person centered planning process to address needs for assistance and devices to help them live in the community.
The Michigan AT Program also offers one on one demonstration of AT devices, like the ones accessed through the CAPABLE Program, to support community living. If you would like a demonstration, please contact the closest local site and set up this free demonstration.
What AT devices do you use to help you live in the community? What is your favorite AT device for community living? What daily activities are hard for you? Could you use AT or techniques to make it easier for you to do them?
J Am Geriatr Soc. 2019 Feb;67(2):363-370. doi: 10.1111/jgs.15713. Epub 2018 Dec 13.
Dissemination of the CAPABLE Model of Care in a Medicaid Waiver Program to Improve Physical Function.
A study by the National Institute of Health found that 55% of seniors take their medications incorrectly. Many older people deal with normal age-related vision loss and others have low vision or blindness. According to the National Eye Institute, about 135 million people around the world have low vision.
There are some resources, including Assistive Technology (AT) available free of charge to help manage medications.
Devices Play Audio of Prescription Information
The device that attaches to prescription containers is provided free of charge with prescription medications that Walgreens dispenses to its pharmacy customers who are blind or who have visual impairments. The Talking Pill Reminder can be recorded to speak the information on the customer’s prescription medication label, and also has an audible alarm to remind patients when to take a medication.
Offered by En-Vision America, a company providing high-tech products aimed at solving problems for individuals with visual impairment, ScriptAbility includes Braille, large print and talking prescription labels. Use the form on their website for a pharmacy near you or call ScriptAbility at 1-800-890-1180 and they will work with your pharmacist or help you find a pharmacy in your area.
These services package medications by day and time to help people in taking them correctly. They don’t necessarily help with issues like taking pills with or without food or other related information.
Assistive Technology for Purchase
Michigan Assistive Technology Program has a number of items in our inventory that can help with understanding prescription label information. These include:
- Penfriend: Using this, you can label anything on to audio labels in your and play them back using the devices.
- A variety of magnifying devices and apps, some with lights, some with stands and others that are handheld.
- A variety of Android and Apple apps that can read printed information by scanning and then reading via audio.
You can also request large print instructions and information to be provided by your pharmacy.
In her 2017 TedTalk, ‘Why Design Should Include Everyone’, Sinéad Burke (writer, educator, and little person) asks, “who are we not designing for? Design impinges on the clothes that I want to wear. I want garments that reflect my personality. It’s difficult to find in the children’s wear department. And often women’s wear requires far too many alterations.” Sinéad spotlights something that people with disabilities deal with everyday: clothes that fit (and flatter!) our bodies in the ways that we need.
In recent years, the fashion industry has started becoming more inclusive of our bodies and needs. Last year, “the Cerebral Palsy Foundation (CPF) held its third Annual Design for Disability Gala, which showcases new fashions for people with disabilities. Outfits, which feature innovations in fit, closures, and form, are designed by students from Fashion Institute of Technology (F.I.T.), Pratt Institute and Parsons School of Design, with insights from CPF’s disability experts and designer Anna Sui. The fashions were remarkable: gorgeous in design as well as the way they incorporated dozens of innovations which made them easier to be worn by people with disabilities. This short film showcases the design process for the event.”
Some designers are creating entire clothing lines that attempt seamless accessibility based on feedback they’ve heard, “Tommy Hilfiger heavily considered feedback from the disability community when creating the new line, and was sure to make significant improvements from its first line after customer feedback.”-Elle. A 2018 article from Mashable shares, “Tommy Hilfiger is expanding its innovative disability-friendly clothing initiative by unveiling Tommy Adaptive, a new line that includes a variety of new and stylish pieces. The line includes the essential fashion pieces like shirts, pants, shorts, dresses, and jackets — but Tommy Adaptive clothes are easier to put on. Modifications such as adjustable hems, one-handed zippers, side-seam openings, bungee cord closure systems, adjustable waists, and magnetic buttons and velcro make the fashionable designs much more disability friendly. Some shirts are even made with easy-open necklines and expanded back openings.”
It’s exciting that access is being thought about in these practical ways and becoming sewn into clothing. Will universal design hang on every hanger in our closets someday? Maybe, but until then, here are a few Assistive Technology (AT) devices that can make dressing & undressing the current clothing in our closets & dressers more accessible:
- Stiff and sore fingers, tremors, or loss of dexterity can turn buttoning a shirt into a frustrating struggle. Try a button hook to fasten regular-size buttons. Or, to avoid buttons, apply/sew Velcro to buttons and clothing; you can pull and push closure together rather than […]
By Guest Blogger, RoAnne Chaney
I have always liked cats, my own and friends’ pets. Dogs are OK, but cats are my favorite fur babies. They are soft, cuddly, and usually, have unique character features. When I started using a wheelchair and my last cat died from illness causing me a lot of pain and grief, and as day-to-day tasks got more difficult to do, I decided to not have pets for a while. My husband and I agreed it would be better to use our energy for traveling and other entertainment for a while. He had lost a dog recently and found this hard to experience too.
My husband and I occasionally talked about getting a cat, but we were never ready, so years went by until late summer 2018 when I had an AFIB and two small strokes and was quite sick for a few months. One day my husband said I needed to get better, get out of the hospital, and come home. My friend said, “how about you agree to get a cat when she gets home.” Even though he knew he had been manipulated a bit, my husband agreed and we now have adopted Zinnia. She is a bit of a goofy diva, but cute.
Some assistive pet care is not really AT, but making an accommodation. Initially, only my husband was feeding Zinnia which meant she went to him for attention and cuddles. We put her food dish on a table which is easier for me to reach and feed her (elevated food dishes are also available). I have exclusively fed her since and she has warmed up to me. She clearly wanted to ride on my power chair with me, but every place she tried to perch was vinyl, so she would slide off. My husband decided to attach a basket to the back of my chair where my headrest goes, but which I rarely use. He found the perfect size basket at Meijer for $7.50 and we lined it with a small, soft blanket. Zinnia has loved this basket – riding with me, sometimes taking naps in it and sometimes putting her head on my shoulder and purring in my ear. I’m also comfortable when she is in her basket with me because I don’t have to worry she will be “underfoot” which means she could get her paws or tail run over by a several-hundred-pound chair.
For play, I tend to use long-handled toys, such as the cat dancer or feather wands, that don’t require long arm extension. There are also electronic, automatic toys that shoot laser beams, wiggle feathers, dart mice across the floor, and so much more.
For now, I am leaving the litter box duty to my husband. However, I have researched several […]
Most of the focus of MDRC’s AT work in domestic violence involves assuring that people with disabilities who are assaulted are able to access existing resources to the same extent that anyone without a disability can. These resources include shelters, support of personal resource needs, support for personal and family safety, and effective use of law enforcement remedies. When full and flexible use of AT is available, it allows the personally customized use of all community resources by the person and family, so that people with disabilities can safely exercise their personal autonomy in the crisis.
But AT can also support people with disabilities through the recovery process from domestic violence, a process that is usually much longer than the resolution of the crisis triggered by a domestic violence instance. Recovery from domestic violence shares much with recovery in other circumstances, such as PTSD, natural and personal disasters, chronic pain, mental illness, addiction, the onset of chronic medical conditions, and other breakdowns of personal and social stability.
Viewed this way, recovery isn’t a passive process of restoring what existed before but is more like the use of the recovery process in mental illness and addiction communities. Most broadly, this kind of Recovery is the way people use their personal decision and social and community support systems to create a new way of living a life of freedom and choice. Such Recovery is focused on building personal control by creating ways to manage personal emotional and other symptoms, immediate and more distant barriers in the person’s environment, and social losses that are part of the trauma-caused breakdown in support. Recovery doesn’t distinguish between “inner” and “outer” barriers. All of these barriers can be goals for the creation of management skills by the person and family. As the saying goes, “Recovery is a Journey”, with no preset map.
AT chosen by the person and used to manage and support their Recovery Journey can be indispensable. Being able to find, understand, and effectively use AT in the Recovery Journey is essential for persons with disabilities as they build their new future. Because one of the barriers to Recovery is the loss of belief in the ability to control one’s future, this post will discuss some options rather than offer “solutions”. People choose a Journey of Recovery, and they choose the tools and methods that make the most sense to them in their current circumstances. There is no other way to truly recover.
AT for Assuring Personal and Family Safety:
There are a large number of personal safety apps out there. They have many different capabilities, and it is important that you think through what you want to be able to do, and whether the initiators, for the capabilities you need, fit your disability characteristics.
bSafe: This app has a wide range of support capabilities. These include private messages to friends about your arrival at a destination, your changing GPS location, an audible alarm, automatic video capture. To make the most use of the app, your friends need […]
Now that the severe frigid temperatures have lifted, people are beginning to venture out again. But people with disabilities who use assistive devices don’t have the option or want to just stay inside all winter. Despite whether the ground-hog saw his shadow or not, we have more winter to come! And believe it or not, some people like winter!
And if you are feeling tired, hungry all the time and depressed, you might have seasonal affective disorder (SAD). Getting natural light is really important to help with SAD, you can read more on our previous post The Nights are Longer and SAD is Here.
I hope you can get out and enjoy our winter wonderland, enjoy and stay safe!
By MATP Staff Jen Mullins, BS, CTRS
“Though plastic straws are a luxury for some, they are a necessity for others. Straws function as an accessibility tool and have historically been used to offer independence for people with disabilities.” –Mashable, 2018.
During a trip to Washington D.C. last year, my first meal in the city was at my hotel’s restaurant. When I was served my water and ice tea, I wasn’t given a straw. I waited until my server came back around and asked for a straw. Her response was that the hotel no longer carried them and this was the way the hotel had chosen to “go green”. I replied that I really needed a straw to drink; I also shared with her that many people need straws to drink and that getting rid of all of them was a barrier to some customers of the hotel and restaurant. She said she understood and would go check with her manager. About 10 minutes later the manager came to my table, a little breathless, holding a single straw in a napkin. He shared that he was sorry for the wait; he had had to go across the street to get the straw. I thanked him and shared the same info I had shared with my server. He communicated that he understood and even said, “My mom has Multiple Sclerosis (MS) and needs straws to drink because she shakes, spills, and chokes when she tries to drink without them.” I was a little taken a back and asked him if he understood, then why did the restaurant choose to get rid of straws. He looked down, seeming to feel uncomfortable, and said that he knew what I was saying and he would try to speak up to his boss about this. That was the end of our conversation. I didn’t desire to shame him, but I do think this needs to be a conversation that gets brought up with restaurants and the like more often.
I’ve read articles and herd from friends that plastic straws are ruining our planet and killing animals & sea life. While single-use plastic straws play a role in adding to the Earth’s garbage & pollution problems, they are just one type of single-use trash. Other single-use plastics and styrofoams are causing harm and many restaurants continue to use them (even after they’ve gotten rid of straws!). Why are straws being targeted?
In 2018 when Starbucks announced their ban on plastic straws, National Public Radio (NPR) published an article where they shared, “For many people with disabilities, going without plastic straws isn’t a question of how much they care about dolphins or sea turtles [the environment in general]; it can be a matter of life or death. There are many alternatives to plastic straws — paper, biodegradable plastics and even reusable straws made from metal or silicone. But […]